So yesterday my cousin had to decide whether he wanted to stay in hospital awaiting a heart or undergo further corrective surgery. This surgery would be fine on any other person but is highly risky for my cousin :-( plus if he has the surgery... he comes off the transplant list!!!!!!!!!! He knows he has his whole families support whatever he chooses, but in the end his chosen what is best for him, and that is it undergo the surgery! I have everything crossed as he is due to go down on Wednesday 5th December 2012. Its a very long procedure as its open heart and there is a chance he may not even make it out of the theatre :-( his a fighter though so i know he will be fine!!!!!!!! In my heart i would have wanted him to stay on the transplant list but his made his decision based on his children, he wants a few more years (hopefully) to have as much fun as he can with his children before things begin to deteriorate again. Words cannot explain how proud i am of my cousin, and i will continue to raise awareness on organ donation so other people don't have to go through similar situations!!!!!
*Give To Receive 2013* / *Jay's Campaign* Hi my name is Kirsty Bylett, I have set up this blog to continue to raise awareness of the importance of Organ Donation and the impact it has. My aim is to double to number of people signed to the donor register by the end of 2013! My recent project - 'My butterfly Family' A charity set up alongside Jay's Campaign aimed to support children and parents who have lost a parent/child due to not receiving an organ transplant.
UPDATE: a newly established charity has been set up in memory of my cousin: 'My Butterfly Family' aiming to help children who has lost a parent and similarly parents who have lost a child due to not receiving their gift - an organ transplant.
For more information, please visit: www.mybutterflyfamily.weebly.com
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*ORGAN DONATION*
Would you recieve an organ if you needed one?
IF YOU BELIEVE IN RECEIVING/DONATING AN ORGAN PLEASE DO SOMETHING ABOUT IT!
According to the NHS organ donation, (2012) Only 31% of the populaion have joined the organ donor register.Within England and Wales, in 2011 there were 484,367 deaths registered.
To understand the importance of becoming an organ donor that meant there were approximatly 2906202 organs wasted in 2011 alone based on each donor providing 6 organs each. (Office for National Statistics, 2012)
For more information, please visit: www.mybutterflyfamily.weebly.com
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*ORGAN DONATION*
Would you recieve an organ if you needed one?
IF YOU BELIEVE IN RECEIVING/DONATING AN ORGAN PLEASE DO SOMETHING ABOUT IT!
According to the NHS organ donation, (2012) Only 31% of the populaion have joined the organ donor register.Within England and Wales, in 2011 there were 484,367 deaths registered.
To understand the importance of becoming an organ donor that meant there were approximatly 2906202 organs wasted in 2011 alone based on each donor providing 6 organs each. (Office for National Statistics, 2012)
My Story
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IN 2010 MY AUNTIE LOST HER BATTLE, LATER THAT YEAR MY DEAR COUSIN WAS DIAGNOSED WITH EXACTLY THE SAME CARDIAC CONDITION.
MY COUSIN WAS ONLY 33 YEARS OLD, HAS 2 AMAZING LITTLE BOYS AND HAD SO MUCH TO FIGHT FOR.
HOWEVER, HE DIDNT RECIEVE THE HEART HE MUCH NEEDED AND SADLY SLIPPED AWAY FROM US 2-01-2013.
THE LAST FEW MONTHS OF HIS LIFE CONSISTED OF LIVING IN HOSPITAL, ON A TRANSPLANT UNIT WHICH WAS FAR FROM HOME MEANING FEW VISITORS WERE ABLE TO TRAVEL THE DISTANCE, ESPECIALLY HIS CHILDREN.
HE WAS UNABLE TO LEAVE THE HISPITAL UNTIL/IF A HEART BECAME AVAIABLE. HE WAS COVERED IN BRUISES, ON ENDLESS MEDEICATOIN, CONSTANTLY HOOKED UP TO MACHINES MEANING HE COULD NOT HAVE A BATH OR A SHOWER, SOMETHING WE DAILY TAKE FOR GRANTED.
All his pain, suffering and loneliness could have been limited if a donor heart was available! YOU CAN BE A HERO AND SAVE LIVES. #liveon
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IN 2010 MY AUNTIE LOST HER BATTLE, LATER THAT YEAR MY DEAR COUSIN WAS DIAGNOSED WITH EXACTLY THE SAME CARDIAC CONDITION.
MY COUSIN WAS ONLY 33 YEARS OLD, HAS 2 AMAZING LITTLE BOYS AND HAD SO MUCH TO FIGHT FOR.
HOWEVER, HE DIDNT RECIEVE THE HEART HE MUCH NEEDED AND SADLY SLIPPED AWAY FROM US 2-01-2013.
THE LAST FEW MONTHS OF HIS LIFE CONSISTED OF LIVING IN HOSPITAL, ON A TRANSPLANT UNIT WHICH WAS FAR FROM HOME MEANING FEW VISITORS WERE ABLE TO TRAVEL THE DISTANCE, ESPECIALLY HIS CHILDREN.
HE WAS UNABLE TO LEAVE THE HISPITAL UNTIL/IF A HEART BECAME AVAIABLE. HE WAS COVERED IN BRUISES, ON ENDLESS MEDEICATOIN, CONSTANTLY HOOKED UP TO MACHINES MEANING HE COULD NOT HAVE A BATH OR A SHOWER, SOMETHING WE DAILY TAKE FOR GRANTED.
All his pain, suffering and loneliness could have been limited if a donor heart was available! YOU CAN BE A HERO AND SAVE LIVES. #liveon
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DONATE to Jay's Campaign (GiveToReceive2013)
Join the donor regitser now
YOU CAN CHOOSE WHAT TO DONATE!!!!! (Stage 2 of registration)
Please dont delay, "I'll register tomorrow".... TOMORROW COULD BE TOO LATE
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The feeling of being desperate for an organ will not hit untill you or a loved one is in the position of needing an organ to survive.
Part of you will always live on once registering to the organ donor register. BE A HERO
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The feeling of being desperate for an organ will not hit untill you or a loved one is in the position of needing an organ to survive.
Part of you will always live on once registering to the organ donor register. BE A HERO
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LUKE 6:38:
"Give, and you will receive. Your gift will return to you in full--pressed down, shaken together to make room for more, running over, and poured into your lap. The amount you give will determine the amount you get back."
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LUKE 6:38:
"Give, and you will receive. Your gift will return to you in full--pressed down, shaken together to make room for more, running over, and poured into your lap. The amount you give will determine the amount you get back."
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