UPDATE: a newly established charity has been set up in memory of my cousin: 'My Butterfly Family' aiming to help children who has lost a parent and similarly parents who have lost a child due to not receiving their gift - an organ transplant.
For more information, please visit: www.mybutterflyfamily.weebly.com

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*ORGAN DONATION*
Would you recieve an organ if you needed one?

IF YOU BELIEVE IN RECEIVING/DONATING AN ORGAN PLEASE DO SOMETHING ABOUT IT!

According to the NHS organ donation, (2012) Only 31% of the populaion have joined the organ donor register.Within England and Wales, in 2011 there were 484,367 deaths registered.

To understand the importance of becoming an organ donor that meant there were approximatly 2906202 organs wasted in 2011 alone based on each donor providing 6 organs each. (Office for National Statistics, 2012)

My Story

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IN 2010 MY AUNTIE LOST HER BATTLE, LATER THAT YEAR MY DEAR COUSIN WAS DIAGNOSED WITH EXACTLY THE SAME CARDIAC CONDITION.

MY COUSIN WAS ONLY 33 YEARS OLD, HAS 2 AMAZING LITTLE BOYS AND HAD SO MUCH TO FIGHT FOR.

HOWEVER, HE DIDNT RECIEVE THE HEART HE MUCH NEEDED AND SADLY SLIPPED AWAY FROM US 2-01-2013.

THE LAST FEW MONTHS OF HIS LIFE CONSISTED OF LIVING IN HOSPITAL, ON A TRANSPLANT UNIT WHICH WAS FAR FROM HOME MEANING FEW VISITORS WERE ABLE TO TRAVEL THE DISTANCE, ESPECIALLY HIS CHILDREN.

HE WAS UNABLE TO LEAVE THE HISPITAL UNTIL/IF A HEART BECAME AVAIABLE. HE WAS COVERED IN BRUISES, ON ENDLESS MEDEICATOIN, CONSTANTLY HOOKED UP TO MACHINES MEANING HE COULD NOT HAVE A BATH OR A SHOWER, SOMETHING WE DAILY TAKE FOR GRANTED.

All his pain, suffering and loneliness could have been limited if a donor heart was available! YOU CAN BE A HERO AND SAVE LIVES. #liveon

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YOU CAN CHOOSE WHAT TO DONATE!!!!! (Stage 2 of registration)
Please dont delay, "I'll register tomorrow".... TOMORROW COULD BE TOO LATE
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The feeling of being desperate for an organ will not hit untill you or a loved one is in the position of needing an organ to survive.

Part of you will always live on once registering to the organ donor register. BE A HERO

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LUKE 6:38:

"Give, and you will receive. Your gift will return to you in full--pressed down, shaken together to make room for more, running over, and poured into your lap. The amount you give will determine the amount you get back."

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Thursday, 2 January 2014

A Year Has Passed Since We Lost You :-(

Today marks 1 year since we lost you!
 
I woke up like any other morning..... then realisation hit me! I would do absolutely anything to see you just once more! To hear your voice again! I miss you so much! I look at a picture of you every morning and lately I have been able to think of some fantastic memories!
When I sit and read stories of how fortunate people have received an organ transplant I cannot help but feel angry! I know this sounds really harsh! But I cannot help to question why they got heir transplant but you didn't! WHY? At work there are alcoholics who attend, then happily tell you their an alcoholic and that they need a transplant! This makes me extremely angry, why should they get a transplant through a self inflicted disease, when there are people, like you, who had no choice to become unwell!
I cannot believe you have been gone for a year already, time goes so quick when you don't see someone! 2013 was a rubbish year, however I'm hoping 2014 brings better things, I am continuing with the campaign you begun hoping to reach more schools this year. I hope the charity set up in your memory really kicks off this year too! I want to start supporting and surprising children and parents who have lost a loved one, like your boys, because their parent/ child didn't get an organ transplant. I think many times about your boys, and if I'm struggling at times, thinking of them helps, at least there is a part of you living on, and what fantastic boys they are turning into! Plus if I'm finding it hard how must they be feeling?

2013 saw us having your first birthday and first Christmas without you! They were difficult, but then all the 'first' times will be! it is expected but nothing can truly prepare for the pain you feel deep down!

Your amazing girlfriend has organised a meal tonight, we are all getting together to celebrate your life! Hopefully this will help! What an amazing life you have had though! You taught me to chase your dreams, to never give up because you never know when things can change and you wont be able to do what you want. I will admit I am starting to worry, lately I have been feeling strange palpitations with my heart, but unsure if that is me being paranoid because of all the cardiac problems in the family, but I'm too scared to get checked out for now!
I will be popping to the cemetery later on with my daughter to see you, she keep telling me how she misses you too! She's always asking to see your boys and randomly talks about them too! I didn't realise a 4 year old would be affected as much as she is! Loosing you Jay has affected so many people! I still struggle, although I have now lost both my nans and both granddads and my auntie (your mum) I still find it difficult to accept that young people do pass away too! Accepting my grandparents had passed, of course wasn't easy, but it was more acceptable as they were elderly, but you jay, you were only in your 30's! FAR TOO YOUNG!
I hope your ok up in heaven, watching over all of us!
I love you so much and miss you more than words can say! xxxxxxx <3
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