UPDATE: a newly established charity has been set up in memory of my cousin: 'My Butterfly Family' aiming to help children who has lost a parent and similarly parents who have lost a child due to not receiving their gift - an organ transplant.
For more information, please visit: www.mybutterflyfamily.weebly.com

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*ORGAN DONATION*
Would you recieve an organ if you needed one?

IF YOU BELIEVE IN RECEIVING/DONATING AN ORGAN PLEASE DO SOMETHING ABOUT IT!

According to the NHS organ donation, (2012) Only 31% of the populaion have joined the organ donor register.Within England and Wales, in 2011 there were 484,367 deaths registered.

To understand the importance of becoming an organ donor that meant there were approximatly 2906202 organs wasted in 2011 alone based on each donor providing 6 organs each. (Office for National Statistics, 2012)

My Story

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IN 2010 MY AUNTIE LOST HER BATTLE, LATER THAT YEAR MY DEAR COUSIN WAS DIAGNOSED WITH EXACTLY THE SAME CARDIAC CONDITION.

MY COUSIN WAS ONLY 33 YEARS OLD, HAS 2 AMAZING LITTLE BOYS AND HAD SO MUCH TO FIGHT FOR.

HOWEVER, HE DIDNT RECIEVE THE HEART HE MUCH NEEDED AND SADLY SLIPPED AWAY FROM US 2-01-2013.

THE LAST FEW MONTHS OF HIS LIFE CONSISTED OF LIVING IN HOSPITAL, ON A TRANSPLANT UNIT WHICH WAS FAR FROM HOME MEANING FEW VISITORS WERE ABLE TO TRAVEL THE DISTANCE, ESPECIALLY HIS CHILDREN.

HE WAS UNABLE TO LEAVE THE HISPITAL UNTIL/IF A HEART BECAME AVAIABLE. HE WAS COVERED IN BRUISES, ON ENDLESS MEDEICATOIN, CONSTANTLY HOOKED UP TO MACHINES MEANING HE COULD NOT HAVE A BATH OR A SHOWER, SOMETHING WE DAILY TAKE FOR GRANTED.

All his pain, suffering and loneliness could have been limited if a donor heart was available! YOU CAN BE A HERO AND SAVE LIVES. #liveon

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YOU CAN CHOOSE WHAT TO DONATE!!!!! (Stage 2 of registration)
Please dont delay, "I'll register tomorrow".... TOMORROW COULD BE TOO LATE
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The feeling of being desperate for an organ will not hit untill you or a loved one is in the position of needing an organ to survive.

Part of you will always live on once registering to the organ donor register. BE A HERO

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LUKE 6:38:

"Give, and you will receive. Your gift will return to you in full--pressed down, shaken together to make room for more, running over, and poured into your lap. The amount you give will determine the amount you get back."

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Wednesday 20 November 2013

THANK YOU! Almost 100 signatures

A HUGE THANK YOU to all who have signed the e-petition to raise awareness of organ donation in secondary schools and to have constant TV coverage! We have almost reached 100 signatures! This is great news, however there is still a VERY long way to go! we NEED to achieve 100,000 signatures in order for this e-petition to be considered!
PLEASE sign and SHARE: http://epetitions.direct.gov.uk/petitions/54567

I have really been struggling this week, missing my cousin so much. Still I read comments and stories about people receiving their first or second transplant, and I still cannot help but feel jealous and anger! Of course I am overjoyed that they have been fortunate enough to receive and organ transplant, but why didn't my cousin? I have so many questions left unanswered however I need to accept these wont be answered! However, my feelings only lead to further determination, for no other family have to go through the same ordeal as we have had to! I will continue to campaign, raise awareness and carry on my cousins memory and legacy via the charity!
Today I saw his two little boys, I wanted to just run up to them and cuddle them sooooo hard! I hate thinking they are growing up without a father! However they are both so strong! Without a doubt, the charity set up in memory of my cousin 'My Butterfly Family' will send these two amazing young boys on a day trip they will never forget! After the tough 3 years they had, they deserve a day which will revolve purely around them, and know that we are here to support them and that we ALL miss their father!
 
Please if you would like to help make this happen, please donate via pay pal: mybutterflyfamily@gmail.com
What is keeping me busy is planning many fundraising events throughout 2014, I will ensure that my cousins campaign continues to grow bigger and bigger every year! For those fortunate enough to have received an organ transplant, they need to treasure their second chance and be aware that it may be down to my cousin's campaign and the challenge of raising awareness of organ donation, that they received their gift of an organ!

If you are interested in finding out more about the fundraising events please visit the website: www.mybutterflyfamily.weebly.com
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