THANK YOU! Almost 100 signatures

A HUGE THANK YOU to all who have signed the e-petition to raise awareness of organ donation in secondary schools and to have constant TV coverage! We have almost reached 100 signatures! This is great news, however there is still a VERY long way to go! we NEED to achieve 100,000 signatures in order for this e-petition to be considered!
PLEASE sign and SHARE: http://epetitions.direct.gov.uk/petitions/54567

I have really been struggling this week, missing my cousin so much. Still I read comments and stories about people receiving their first or second transplant, and I still cannot help but feel jealous and anger! Of course I am overjoyed that they have been fortunate enough to receive and organ transplant, but why didn't my cousin? I have so many questions left unanswered however I need to accept these wont be answered! However, my feelings only lead to further determination, for no other family have to go through the same ordeal as we have had to! I will continue to campaign, raise awareness and carry on my cousins memory and legacy via the charity!

Today I saw his two little boys, I wanted to just run up to them and cuddle them sooooo hard! I hate thinking they are growing up without a father! However they are both so strong! Without a doubt, the charity set up in memory of my cousin 'My Butterfly Family' will send these two amazing young boys on a day trip they will never forget! After the tough 3 years they had, they deserve a day which will revolve purely around them, and know that we are here to support them and that we ALL miss their father!
 

Please if you would like to help make this happen, please donate via pay pal: mybutterflyfamily@gmail.com

What is keeping me busy is planning many fundraising events throughout 2014, I will ensure that my cousins campaign continues to grow bigger and bigger every year! For those fortunate enough to have received an organ transplant, they need to treasure their second chance and be aware that it may be down to my cousin's campaign and the challenge of raising awareness of organ donation, that they received their gift of an organ!

If you are interested in finding out more about the fundraising events please visit the website: www.mybutterflyfamily.weebly.com

Charity Bike Ride - 56 Miles

I have organised a charity bike ride on the 20th July 2014 to celebrate my dear cousin Jay's birthday. It is aimed for friends, family and people local and far, in similar situations to all get together to share stories and simply support one another!

 Raising money for the newly established charity set up in Jays memory - My Butterfly Family.

It will be tough - the route is a 56 mile loop, starting at the Viking Ship - Pegwell Bay Kent, visiting Joss Bay, Reculver, Whitstable, Canterbury and then returning via sandwhich to the Viking Ship - Pegwell.

COST: £5 per person (payable on the day)
MEETING PLACE: Pegwell bay - Viking Ship.
TIME: from 9:30am to SET OFF at 10am!

It is NOT a race, we will all set off together, have regular refreshments breaks which will also allow for group photos for our progress.

If you would like to take part please say so, so I can forward sponsorship forms and details.

 

If you would like to Sponsor me please do so via paypal: mybutterflyfamily@gmail.com Even £1 will be truly gratefully received!

 Thank you

Such Tragic News

So not only have I lost my dear cousin at the start of 2013 due to not receiving his heart transplant but today I found out that a very good childhood school friend is now on the transplant list needing his gift of a lung transplant. Jon Hardy has battled his whole life fighting a condition called Cystic Fibrosis (CF) which is a genetic condition in which the lungs and digestive system become clogged with thick sticky mucus. Jon's life so far has constantly consisted of endless trips in and out of hospital, bronchodilators , antibiotics and physiotherapy. If you know anyone with this condition your know exactly how limiting this awful condition is! There is NO treatment as such, the only real effective treatment is a lung transplant which even then, if successful continues with a life of endless medication! However they have been given a second chance, a HERO who SIGNED UP to the organ donor register will be able to provide my friend, and others, with a second chance! Just remember part of you will always live on, and to many, your be known and remembered as a true, noble HERO!

2013 truly has been an awful year, please if you haven't already done so, PLEASE sign up to the Organ Donor Register!

Many admit that they don't like thinking about the end of their life, and that signing up to the organ donor register is a devastating matter to consider. However put yourself in the shoes of a person requiring a transplant - wouldn't you wish and hope that an organ becomes available for you? Considering what happens at the end of your life shouldn't be a scary matter, by signing up your make such a difference and can save up to 9 lives! WOW! Also take into consideration that the feeling you have when considering signing up to the donor register will not be remotely close to the feelings of those requiring a transplant. They are aware that their life may be cut short, imagine the fear they must be feeling. YOU can do something about this! There are over 7500 people requiring a transplant, of these, almost 1000 pass away every year because they have not received their gift! PLEASE help change this!

"I'll sign up tomorrow" Tomorrow could be too late! Act now! Save Lives!