UPDATE: a newly established charity has been set up in memory of my cousin: 'My Butterfly Family' aiming to help children who has lost a parent and similarly parents who have lost a child due to not receiving their gift - an organ transplant.
For more information, please visit:
www.mybutterflyfamily.weebly.com


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*ORGAN DONATION*
Would you recieve an organ if you needed one?

IF YOU BELIEVE IN RECEIVING/DONATING AN ORGAN PLEASE DO SOMETHING ABOUT IT!

According to the NHS organ donation, (2012) Only 31% of the populaion have joined the organ donor register.Within England and Wales, in 2011 there were 484,367 deaths registered.

To understand the importance of becoming an organ donor that meant there were approximatly 2906202 organs wasted in 2011 alone based on each donor providing 6 organs each. (Office for National Statistics, 2012)

My Story

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IN 2010 MY AUNTIE LOST HER BATTLE, LATER THAT YEAR MY DEAR COUSIN WAS DIAGNOSED WITH EXACTLY THE SAME CARDIAC CONDITION.

MY COUSIN WAS ONLY 33 YEARS OLD, HAS 2 AMAZING LITTLE BOYS AND HAD SO MUCH TO FIGHT FOR.

HOWEVER, HE DIDNT RECIEVE THE HEART HE MUCH NEEDED AND SADLY SLIPPED AWAY FROM US 2-01-2013.

THE LAST FEW MONTHS OF HIS LIFE CONSISTED OF LIVING IN HOSPITAL, ON A TRANSPLANT UNIT WHICH WAS FAR FROM HOME MEANING FEW VISITORS WERE ABLE TO TRAVEL THE DISTANCE, ESPECIALLY HIS CHILDREN.

HE WAS UNABLE TO LEAVE THE HISPITAL UNTIL/IF A HEART BECAME AVAIABLE. HE WAS COVERED IN BRUISES, ON ENDLESS MEDEICATOIN, CONSTANTLY HOOKED UP TO MACHINES MEANING HE COULD NOT HAVE A BATH OR A SHOWER, SOMETHING WE DAILY TAKE FOR GRANTED.


All his pain, suffering and loneliness could have been limited if a donor heart was available! YOU CAN BE A HERO AND SAVE LIVES. #liveon

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YOU CAN CHOOSE WHAT TO DONATE!!!!! (Stage 2 of registration)
Please dont delay, "I'll register tomorrow".... TOMORROW COULD BE TOO LATE
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The feeling of being desperate for an organ will not hit untill you or a loved one is in the position of needing an organ to survive.

Part of you will always live on once registering to the organ donor register.
BE A HERO

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LUKE 6:38:

"Give, and you will receive. Your gift will return to you in full--pressed down, shaken together to make room for more, running over, and poured into your lap. The amount you give will determine the amount you get back."

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Saturday 29 December 2012

Update on my cousin

CHRISTMAS TIME - my cousin is still in hospital, he is currently under sedation in hope that this will help his body recover itself after corrective surgery. Things were looking up and he began to make small movements towards his beloved girlfriend, however then things changed and it is now being considered whether he has has a stroke :-( because of this all those tiny movements have stopped and yet again under sedation, the effects of the stroke are yet to be discovered. Deep down I'm gutted he did not wait for a new heart however i can only imagine what thoughts were going through his head. The doctors did explain the positive outcomes to the surgery he had however so far we are yet to see them, all we can do is have everything crossed! HE WILL BEAT THIS!!! I also cant help but think how useless my efforts have been in order to convince people to sign up to the organ donor register! Spreading the word of this topic is A LOT harder than i was expecting!

Monday 17 December 2012

Over 100+ Hits

WOW, my video has been up on youtube for only 2 days and already it has over 100 viewings! I couldnt be happier with this result! I cannot wait to get in touch with the organ donation organisation and discover whether or not they have had many people sign up since i started this campaign. Fingers Crossed it is a success! Either way im not bakcing down!

link - http://www.youtube.com/watch?v=eAsV2MbEJFI

THANKYOU TO EVERYONE WHO HAS SHOWN SUPPORT

Sunday 16 December 2012

Department of Education

So today i contacted the department of education in hope for a positive reply. I have enquired having just one day out of the year 11 academic year to hold an assembly to discuss and raise awareness of organ donation. I thought year 11's would be best as i feel they have the capability and capacity to fully understand and make their own decision whether or not to sign up to the donor register. I have offered to devise a PowerPoint presentation to use in all schools and suggested that teachers could run the assembly to save on money rather than employing specific staff purely for this occasion. All i can do is wait and hope that they deeply consider this idea as i feel it really would be of great benefit to everyone especially those needing organs! If i don't get a reply within 15 working days i will pursue! This is my next mission now that my video is completed :-)

Saturday 15 December 2012

My Video is Finally Live :-)

So after weeks of working on a little project i have finally completed it and it is up on you tube!!!!

http://www.youtube.com/watch?v=eAsV2MbEJFI

I hope this video will have the effect i am aiming for and get people to sign up to the organ donor register! The video explains the journey my cousin has to deal with as well as what family members are going through! Please Watch, share and spread the word!

many thanks! xx

Wednesday 12 December 2012

He has had the surgery

So my cousin ended up waiting till Monday the 10th December 2012 for his repair surgery. He went down at 7.10am and didn't come out till gone 5pm. However during surgery he suffered a cardiac arrest :-( Minus a few complications it went fairly well however he is now on an Intensive Care Ward. He is basically on life support as it has now been discovered he is in renal failure too. Is this a sign to tell us it is his time to go? How on earth are we meant to deal with facing this? He was, in our eyes, doing OK whilst awaiting for a heart and now he has undergone repair surgery due to there not being a heart available and he is worse off!!! How is this right!? Upon hearing the news i simply turned round and said "well just give him new kidneys and a new heart!"....IF ONLY IT WAS THAT SIMPLE!!! It has been 2 days now and my cousin is still fighting however knowing there is absolutely nothing we can do is killing us too!

Friday 30 November 2012

Decision Day

So yesterday my cousin had to decide whether he wanted to stay in hospital awaiting a heart or undergo further corrective surgery. This surgery would be fine on any other person but is highly risky for my cousin :-( plus if he has the surgery... he comes off the transplant list!!!!!!!!!! He knows he has his whole families support whatever he chooses, but in the end his chosen what is best for him, and that is it undergo the surgery! I have everything crossed as he is due to go down on Wednesday 5th December 2012. Its a very long procedure as its open heart and there is a chance he may not even make it out of the theatre :-( his a fighter though so i know he will be fine!!!!!!!! In my heart i would have wanted him to stay on the transplant list but his made his decision based on his children, he wants a few more years (hopefully) to have as much fun as he can with his children before things begin to deteriorate again. Words cannot explain how proud i am of my cousin, and i will continue to raise awareness on organ donation so other people don't have to go through similar situations!!!!!

Saturday 24 November 2012

Support from Thanet Gazette

Furthermore to raising awareness of the need for people to sign up to the organ donor register myself and my cousin were able to get an article in the Thanet Gazette on the 23rd November 2012 courtesy of a friend of his. Within the text my cousin has made some strong facts which i hope will make people realise just what organ donation means to those seeking an organ!
IF YOU WOULD LIKE TO REGISTER PLEASE FOLLOW THIS LINK - http://www.organdonation.nhs.uk/ukt/  many, many thanks!

Thursday 22 November 2012

tonight on itv1

Tonight on itv1 - waiting for a heart. I can only Hope and beg everyone watches this as it will really put into perspective what those awaiting organ transplants have to go through.

Sunday 18 November 2012

False Hope

So yesterday my cousin was informed there is a mathcing heart....brilliant!!!!!!!! he was preped for surgery etc. then told it needed to be checked over to make sure it is all ok. there was also 1 other guy who was a match for it...can you imagine the tension!!!!!! 2 anxious hours later.... the heart was found to be defective! how upsetting for everyone but particulary for my cousin! the thought that all his suffering and pain could be over! that he could begin to live his life properly again and spend quality with his much loved family...time he cannot win back from being in hospital!!!! PLEASE PLEASE PLEASE sign up to the organ donor register!!!!!

Monday 12 November 2012

Today ive started up this blog in hope to spread awareness regarding the desperate need for people to join the organ donor register. I have done this not only for my cousin but for all those children and adults whom desperatly seek an organ. Im 23, i have signed up to the register as the thought of saving someones life once mine is over could not satisfy me more. PLEASE CAN YOU DO THE SAME, many thanks.