UPDATE: a newly established charity has been set up in memory of my cousin: 'My Butterfly Family' aiming to help children who has lost a parent and similarly parents who have lost a child due to not receiving their gift - an organ transplant.
For more information, please visit:
www.mybutterflyfamily.weebly.com


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*ORGAN DONATION*
Would you recieve an organ if you needed one?

IF YOU BELIEVE IN RECEIVING/DONATING AN ORGAN PLEASE DO SOMETHING ABOUT IT!

According to the NHS organ donation, (2012) Only 31% of the populaion have joined the organ donor register.Within England and Wales, in 2011 there were 484,367 deaths registered.

To understand the importance of becoming an organ donor that meant there were approximatly 2906202 organs wasted in 2011 alone based on each donor providing 6 organs each. (Office for National Statistics, 2012)

My Story

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IN 2010 MY AUNTIE LOST HER BATTLE, LATER THAT YEAR MY DEAR COUSIN WAS DIAGNOSED WITH EXACTLY THE SAME CARDIAC CONDITION.

MY COUSIN WAS ONLY 33 YEARS OLD, HAS 2 AMAZING LITTLE BOYS AND HAD SO MUCH TO FIGHT FOR.

HOWEVER, HE DIDNT RECIEVE THE HEART HE MUCH NEEDED AND SADLY SLIPPED AWAY FROM US 2-01-2013.

THE LAST FEW MONTHS OF HIS LIFE CONSISTED OF LIVING IN HOSPITAL, ON A TRANSPLANT UNIT WHICH WAS FAR FROM HOME MEANING FEW VISITORS WERE ABLE TO TRAVEL THE DISTANCE, ESPECIALLY HIS CHILDREN.

HE WAS UNABLE TO LEAVE THE HISPITAL UNTIL/IF A HEART BECAME AVAIABLE. HE WAS COVERED IN BRUISES, ON ENDLESS MEDEICATOIN, CONSTANTLY HOOKED UP TO MACHINES MEANING HE COULD NOT HAVE A BATH OR A SHOWER, SOMETHING WE DAILY TAKE FOR GRANTED.


All his pain, suffering and loneliness could have been limited if a donor heart was available! YOU CAN BE A HERO AND SAVE LIVES. #liveon

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YOU CAN CHOOSE WHAT TO DONATE!!!!! (Stage 2 of registration)
Please dont delay, "I'll register tomorrow".... TOMORROW COULD BE TOO LATE
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The feeling of being desperate for an organ will not hit untill you or a loved one is in the position of needing an organ to survive.

Part of you will always live on once registering to the organ donor register.
BE A HERO

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LUKE 6:38:

"Give, and you will receive. Your gift will return to you in full--pressed down, shaken together to make room for more, running over, and poured into your lap. The amount you give will determine the amount you get back."

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Monday 23 December 2013

Such Tragedy Turns Into A Beautiful Gift

A MUCH loved young woman who died in a crash with a school coach has saved the lives of eight others after her organs were donated.

Sophie Crew, 23, died in a head on collision on the B3078, near Horton, in June after she crashed into a school bus carrying 45 pupils from the Alderholt and Cranborne areas.
At the inquest Coroner Sheriff Payne recorded a verdict of accidental death after hearing Miss Crew’s Mini was seen driving into the path of the coach on June 11. He said that Miss Crew’s car must have only been on the wrong side of the road by a foot but “because of the width of the coach there was little room for error”. The collision resulted in the coach leaving the road and hitting a tree, a road sign and a telegraph pole. Miss Crew’s father Stephen spoke at the inquest and described his daughter, who worked as a scientist for Wessex Water, as a popular young woman who had many friends and spent time helping charities. In a statement the family said: “Sophie’s tragic death has affected so many people as she embraced every aspect of life and was such a vibrant and enthusiastic individual.
“Sophie’s endless love and affection touched so many and is one of the most difficult consequences of her life ending too soon.
“As a family we would like to thank everyone for their support and love throughout this devastating time of our lives.”
During the inquest the coach driver Christopher Tomlin said the crash was very traumatic for everyone involved, including the 26 pupils on their way to Queen Elizabeth School in Wimborne,
He said: “I think about it every day and night as it was traumatic for everyone involved.”
The inquest heard some of the children were not wearing seatbelts and there were a number of minor injuries, but everyone was taken off the coach safely.
Following the crash Miss Crew was taken to Poole Hospital with a severe head injury but died hours later.

During this time in hospital the family agreed to organ donation and as a result Mr Payne said that eight people have been saved.
 
 
*OUR DEEPEST THOUGHTS GO TO THIS FAMILY*

Give the Best Gift This Christmas

Many more transplants are required for people to survive, the above is only relevant for those requiring heart and lung transplants. This is the reason why I have set up 'My Butterfly Family', the above shows 24 children requiring transplants and 250 adults requiring organ transplants. Imagine how many of those adults have children which they may potentially leave behind if they are not fortunate enough to receive their organ transplant.

If you are reading this, ask yourself: Am I signed up to the organ donor register? IF YES- do your relatives know your wishes? If NO, ask yourself why not?

While many are enjoying the Christmas holidays, please take time to consider those who are away from their families, who have to spend their Christmas in hospital, and for those who wish to make and see each and every day! You can help those requiring transplants to stay positive simply by signing up to the organ donor register! Let them know you are thinking of them and helping as much as you can!
 
GIVE THE BEST CHRISTMAS GIFT - HOPE

To sign up to the organ donor register: https://www.organdonation.nhs.uk/how_to_become_a_donor/registration/consent.asp

Wednesday 20 November 2013

THANK YOU! Almost 100 signatures

A HUGE THANK YOU to all who have signed the e-petition to raise awareness of organ donation in secondary schools and to have constant TV coverage! We have almost reached 100 signatures! This is great news, however there is still a VERY long way to go! we NEED to achieve 100,000 signatures in order for this e-petition to be considered!
PLEASE sign and SHARE: http://epetitions.direct.gov.uk/petitions/54567

I have really been struggling this week, missing my cousin so much. Still I read comments and stories about people receiving their first or second transplant, and I still cannot help but feel jealous and anger! Of course I am overjoyed that they have been fortunate enough to receive and organ transplant, but why didn't my cousin? I have so many questions left unanswered however I need to accept these wont be answered! However, my feelings only lead to further determination, for no other family have to go through the same ordeal as we have had to! I will continue to campaign, raise awareness and carry on my cousins memory and legacy via the charity!
Today I saw his two little boys, I wanted to just run up to them and cuddle them sooooo hard! I hate thinking they are growing up without a father! However they are both so strong! Without a doubt, the charity set up in memory of my cousin 'My Butterfly Family' will send these two amazing young boys on a day trip they will never forget! After the tough 3 years they had, they deserve a day which will revolve purely around them, and know that we are here to support them and that we ALL miss their father!
 
Please if you would like to help make this happen, please donate via pay pal: mybutterflyfamily@gmail.com
What is keeping me busy is planning many fundraising events throughout 2014, I will ensure that my cousins campaign continues to grow bigger and bigger every year! For those fortunate enough to have received an organ transplant, they need to treasure their second chance and be aware that it may be down to my cousin's campaign and the challenge of raising awareness of organ donation, that they received their gift of an organ!

If you are interested in finding out more about the fundraising events please visit the website: www.mybutterflyfamily.weebly.com

Saturday 16 November 2013

Charity Bike Ride - 56 Miles

I have organised a charity bike ride on the 20th July 2014 to celebrate my dear cousin Jay's birthday. It is aimed for friends, family and people local and far, in similar situations to all get together to share stories and simply support one another!

 Raising money for the newly established charity set up in Jays memory - My Butterfly Family.

It will be tough - the route is a 56 mile loop, starting at the Viking Ship - Pegwell Bay Kent, visiting Joss Bay, Reculver, Whitstable, Canterbury and then returning via sandwhich to the Viking Ship - Pegwell.

COST: £5 per person (payable on the day)
MEETING PLACE: Pegwell bay - Viking Ship.
TIME: from 9:30am to SET OFF at 10am!

It is NOT a race, we will all set off together, have regular refreshments breaks which will also allow for group photos for our progress.

If you would like to take part please say so, so I can forward sponsorship forms and details.
 
If you would like to Sponsor me please do so via paypal: mybutterflyfamily@gmail.com Even £1 will be truly gratefully received!

 Thank you

Thursday 14 November 2013

Such Tragic News

So not only have I lost my dear cousin at the start of 2013 due to not receiving his heart transplant but today I found out that a very good childhood school friend is now on the transplant list needing his gift of a lung transplant. Jon Hardy has battled his whole life fighting a condition called Cystic Fibrosis (CF) which is a genetic condition in which the lungs and digestive system become clogged with thick sticky mucus. Jon's life so far has constantly consisted of endless trips in and out of hospital, bronchodilators , antibiotics and physiotherapy. If you know anyone with this condition your know exactly how limiting this awful condition is! There is NO treatment as such, the only real effective treatment is a lung transplant which even then, if successful continues with a life of endless medication! However they have been given a second chance, a HERO who SIGNED UP to the organ donor register will be able to provide my friend, and others, with a second chance! Just remember part of you will always live on, and to many, your be known and remembered as a true, noble HERO!

2013 truly has been an awful year, please if you haven't already done so, PLEASE sign up to the Organ Donor Register!

Many admit that they don't like thinking about the end of their life, and that signing up to the organ donor register is a devastating matter to consider. However put yourself in the shoes of a person requiring a transplant - wouldn't you wish and hope that an organ becomes available for you? Considering what happens at the end of your life shouldn't be a scary matter, by signing up your make such a difference and can save up to 9 lives! WOW! Also take into consideration that the feeling you have when considering signing up to the donor register will not be remotely close to the feelings of those requiring a transplant. They are aware that their life may be cut short, imagine the fear they must be feeling. YOU can do something about this! There are over 7500 people requiring a transplant, of these, almost 1000 pass away every year because they have not received their gift! PLEASE help change this!

"I'll sign up tomorrow" Tomorrow could be too late! Act now! Save Lives!

Tuesday 22 October 2013

First Memorial Gift Ordered Via The Newly Establised Charity (My Butterfly Family)

The newly established charity in memory of my cousin, (My Butterfly Family) has finally commenced and we have been able to order the very first memorial gift for a very special young lady. Thank you just isn't enough to every one who has kindly helped achieve this.

If you would like to know more about this charity please visit: www.mybutterflyfamily.weebly.com

If you would like to donate to the charity please do so via PayPal: mybutterflyfamily@gmail.com

Once again, thank you!

Thursday 10 October 2013

Time for BIGGER changes

So I have now come up with a fantastic new idea and through research I feel this has the potential to be a HUGE success. With the given situation regarding my dear cousin, this has opened my eyes into the suffering his children have gone through in accepting that their father has passed away. Prior to this, they had to accept he was living in hospital and had limited chances to visit him. Putting this all together I have taken on the challenge of setting up my own charity. It will be aimed at families who have lost a loved one whether it be a child loosing a parent or a parent loosing a child due to not receiving a much needed organ transplant. This being due to research and discovering there are limited sources to help children and parents who have lost a loved one due to organ failure and personally feeling that after witnessing such a traumatic experience, both children and parents need support, to know there are others in a similar situation and to be offered a day in which revolves around them. Being fully aware that there are many families within the UK in a similar situation there will be a selection process of children or parents who are nominated to the charity. The charity itself will rely purely on generous donations from the public so please understand that it may be a slow process at present.

Each successful nominated family will receive a beautiful memorial gift of their loved one and then be offered a day which is purely revolved around the person/s nominated. This is aimed to help with the bereavement process and to show those affected that although their loved one has gone, continuing with their life does not mean they have forgotten, they are learning how to cope without their loved one. Through research it became clear that many would appreciate a memorial item which they can look at everyday, knowing they are supported but most importantly this will help with the bereavement process. Many also agreed that a day revolving around the nominated person would help, particularly children, in accepting and to provide positive emotions.

The main aim of the charity is to 'buddy' up local families who are experiencing similar situations aiming to provided much needed support and to be able to answer any questions. There is no better advice than what comes from a person who has experienced the same.

I fully understand this may be a slow process in starting up this charity, so please bare with us, however through research I need to achieve £5,000 a year to be able to set up and register this charity officially. Because of this small set back, I have set up a pay pal account in which donations can be sent to and already planning future promotional events aiming to help achieve and progress this target.

If you would like to make a donation towards this charity please send via PayPal to: mybutterflyfamily@gmail.com  Any amount will be gratefully received. And please remember that your be helping both children and parents who have experienced such a traumatic event which no one should have to experience.
 
Thank you in advance.

Tuesday 24 September 2013

My own Epetition - organ donation needs more coverage on TV & schools

Looking through the Epetition website, I am amazed to see that many regarding organ donation haven't managed to receive the 100,000 signatures needed to be debated in the House of Commons. Well its about to change, I have started up an Epetition for 1 year which states that organ donation needs more coverage on TV and secondary schools. From the heart" a TV campaign managed a total close to 147,000 people signed to the donor register throughout the week of the campaign. Imagine the number of potential registered donors with regular TV promotion. As for secondary schools, well through personal contact with the Department of Education, it became clear that awareness may be raised during PSHE lessons to which the school decided whether or not to discuss the topic. I personally went into a local school and performed a presentation the feedback I received was fantastic and many had questions and voiced concerns they had. Many pupils also reported that they will go home and discuss organ donation with their parents. I feel this was a huge success, and it is clear many young people have unanswered questions regarding organ donation which need to be answered.

Lets achieve the much needed 100,000 signatures and make a start on raising awareness in my cousins memory!
 
TO SIGN THE EPETITION PLEASE GO TO: http://epetitions.direct.gov.uk/petitions/54567 

Wednesday 4 September 2013

(Another) PETITION: Free Prescriptions for Organ Transplant Recipients

For those fortunate enough to receive an organ, I agree strongly with this petition! they should receive free prescriptions. Receiving an organ does not happen by choice and it is a real life changing situation and experience, so why should they have to pay for medication which is essential for them? People who take drugs don't have to pay for their methadone, so why should those who HAVE to have medication because of an illness which occurred not through choice. As a nurse I fully understand there are many reasons why people may turn to drugs so please do not feel I am discriminating against people as I am not, far from it. As many of you may have gathered by now, organ donation and all aspects around this topic are very close to my heart and there is a lot of change required around this.

If you also agree that people who receive an organ should not have to pay for their medication  then please sign the petition below! Thank you in advance.

Organ Donation: Switch to an Opt-Out System

Report by the BBC: A change in the law to bring in an opt-out organ donation system has been overwhelmingly voted through by Welsh assembly members.
Wales will become the first UK country to adopt a process where individuals will be presumed to have consented for their organs to be donated unless they opt out.

If Wales can achieve this, then why cant England? It doesn't take much to consider the amount of lives which could be saved if everyone was signed to the organ donor register. This is a topic I feel very strongly about! Too many people will happily take an organ if they required one but many wont sign to the organ donor register - WHY? yes it is fearful to consider the end of your life however, for me, I feel great knowing I may save another innocent persons life when mine is over.

Please if you feel strongly that the England should switch to the opt-out system, please sign this petition! thank you in advance.

Monday 26 August 2013

Family Fun Day in Memory of Jay for Harefield Hospital

On the 3rd August 2013 I organised a family fun day aimed to raise funds for the transplant unit at Harefield hospital where my cousin spent his final few months. I had been organising this event since the beginning of 2013, and worked really hard to ensure I had plenty for families to do.
 Stalls included:
  • baby competition
  • baby stall
  • bouncy castle
  • hook a duck
  • hoopla
  • refreshments
  • bric a brac
  • cake stall
  • guess the weight of the cake
  • how many sweets in the jar
  • displays - army cadets and dancers
  • clairvoyant
  • teddy tombola
  • book and DVD stall
  • grand raffle
  • candyfloss
  • And others but most importantly an Organ donation stall.

It was a fantastic day and a great turn out! Thank you isn't enough to all those who helped out on the day! My first event I have ever organised by myself turned out to be very stressful however hasn't put me off! Bigger things will be happening all in memory of my cousin and aimed to raise more money so other families do not have to suffer what we or my cousin did.
 
**IN TOTAL OVER £700 WAS RAISED** I aim to spend this money on hair washing facilities for the transplant unit in hope to improve simple, living conditions.
 

Sunday 30 June 2013

SkyDive in Memory of my Cousin to raise awareness and Funds.

Hello, I hope you are well! On the 21st July 2013 myself and a few others will be doing a sky dive in memory of my cousin! This is a special day as it is his birthday but is also the first birthday since we lost him :-( Please take note that I have personally paid to do the sky dive and have NOT gone through a charity scheme! The reason for this is through a scheme the charity seemed to receive very little and my view is if I want to do a sky dive then I will pay for myself. Doing this will not be easy! My palms sweat at the mere thought of jumping!!!!! I hate heights and planes - not a great combination! but my cousin taught my that you only live once so make the most of it! He was scared and went through a lot, he had no choice but NEVER did he give in nor be defeated until he truly could not take anymore!

Please, if you would like to sponsor me to jump and continue to raise awareness on organ donation and raise funds for the British Heart Foundation, please click on the link below! You will be taken to a page linked to the British Heart Foundation, this is also to prove that all your funds will be going to the charity!

Thank you in advance!
 

Friday 17 May 2013

Organ Donation - Through a Lens

I have composed another shorter video which is aimed at people signing up to the organ donor register. I have included both old material from my previous video and new material. All pictures used in the video are consented for use with written permission. The main reason for this video being composed is for use in the Organ Donation- Though A Lens Video Competition. Please if you have not seen the previous video, please watch this one and take into serious consideration the impact you could have by signing up to the organ donor register. #Jay's campaign

To Watch the video CLICK HERE: http://www.youtube.com/watch?v=itAUDNU_vQ8

Friday 3 May 2013

Spreading the Word - Jay's Campaign

At last the car stickers have finally arrived! They look great and are eye catching! I really do hope they have the desired affect im after which is to inform everyone exactly what Jay's Campaign is all about and to get EVERYONE to sign up to the Organ Donor register!

If you would like a car sticker they are only £4 each, colours available are red, white or black. All profit is going to Harefield Hospital Transplant unit in memory of my dear cousin!

Please contact: givetoreceive2013@gmail.com to place an order!

Many Thanks xxx

Wednesday 13 February 2013

My First Presentation in a Local School

Today i held a presentation at a local school in Kent and i could not be happier with how it went! I was extremely nervous but i soon calmed down and enjoyed the experience. Knowing who and why i was there helped calm me down! I composed a presentation which included information all about organ donation, statistics, my cousin story, other reallife stories, important facts, as well as videos from youtube including the video i personally composed!

Many questions were asked at end, and many leaflets were taken and filled out there and then! I must admit it was mostly females who took the leaflets however i had lots of reports back saying they are going to go home and talk to their parents about organ donation!

One pupil who really stuck out asked me a question - "why do we have to give consent to give something that we don't need when we are dead?" Such a strong question! I informed about the opt-out situation and he went onto explain how in Ireland unless you carry a card saying no to donation then your organs are taken and donated! BRILLIANT - WE NEED THIS IN ENGLAND!

On an even more positive note - i have been invited back next year to do the same for the up coming year 10's! BRILLIANT! Now i just need to continue to keep hounding other local schools - i need to get into schools1 After today, it is clear that i really did make an impression and that everything i am doing is really worth while!

To back up everything i have done, there is a series on ITV tonight - Have a Heart. I informed the pupils of this so i hope they watch to get more of an insight into the importance of organ donation!

Wednesday 6 February 2013

the fundraising begins!

what an amazing turn out we had had for "walk a mile for a smile"

overall we raised over £600 which is all going into my cousins account with the british heart foundation!! a fantastic start!

we cannot thank everyone enough for participating and donating! it was a very emotional, overwhelming and exciting day!

i held a stool in the local cafe displaying all organ donation information and the majority of items were taken! lets hope they have a positive outcome!!

if you could not make the event but would like to donate in memory of my cousin then please do! HOW: type in google "bhf jays campaign" and a link will come up! that is my cousins account! MANY THANKS!

Tuesday 29 January 2013

Walk a mile for a smile

On the 2nd February 2013, exactly 1 month after my cousins passing, there is a fundraising event being held in memory of my cousin - WALK A MILE FOR A SMILE. The title says it all, no mater how unwell my cousin was always smiling so please come along, smile and talk about all your memories of my cousin! If you unfortunately id not know my cousin in person then please still come along and talk about how his campaign has inspired you!

If you do not live locally there has been a donation page set up linked directly with the British Heart foundation, please donate, even £1 is a massive help! Thank you!

Date: 2-2-2013
Location - Ramsgate Boating Pool - Kent.
Time- 12noon till 2pm

*PLEASE WEAR SOMETHING RED*

There will be a stool held with further information about organ donation and forms to fill in should you want to sign up there and then to the organ donor register.

We look forward to seeing you all! xx

PLEASE DONATE: https://lastinghope.bhf.org.uk/jayscampaign

Thursday 24 January 2013

A Service to Celebrate His Life

23rd January 2013 - The funeral for my cousin!
A lot of preparation has gone into making sure my cousin has the send off he wanted!

I found it hard to sleep, my emotions all over the place, i really am NEVER going to see my cousin again not speak to him or get 1 last text message from him! Still... i must stay strong!

When I arrived at my uncles house, the atmosphere was strange - I didn't know what to say to anyone and my eyes just filled up with tears! Seeing everyone together was great, but it was all for the wrong reason!

Waiting outside - every second felt like a minute, then....there he was! Excitement came over me - MY COUSIN WAS HERE!!!!! But wait - his not really here is he? Tears flooded down my face! knowing my cousin was inside that car - i just wanted to get him out and see him, just 1 last time!

Turning up to the crematorium was a scene ill never forget! So many people had turned up to say goodbye to an amazing person! It is clear just what an impact my cousin had on everyone he met! People had to stand up and outside as there was not enough room for them all!

The service was as lovely as could be. Instead of a religious service, my cousin wanted a slide show of photos from his life played alongside music - just seeing those photos made me realise again that i wont ever see his face again! Knowing just that fact kills me and the pain i feel in my heart is so intense! However watching the slid show made us all see just what an amazing life my cousin had although cut very short!

The wake was lovely too, speeches were performed by my cousin girlfriend, her father and my cousins best friend. Such an emotional time but they all done so well! My cousin would be proud! It was great listening to all the memories people have of my cousin, however i still want to be making memories! I can only hope this pain fades - if I'm feeling this much pain i cannot but wonder what his girlfriend, children, father and brothers are feeling too!

You were taken too soon but your never be forgotten! You made such an impact on so many peoples lives! Sleep tight cousin - i will always love you! xxxx

Thursday 17 January 2013

My Very Own Leaflets are Complete

Finally Ive managed to complete the leaflets!!!!!! I thought that by designing my own about organ donation it may catch peoples eyes especially when out canvassing! (Arrangements for this are underway) I feel great, everything finally feels like it is all coming together! I have also had several emails back stating that places would like to display my leaflets in order to help!

I hope your proud up there cousin!!! Not a day goes by where i don't think about you!!! I will continue your campaign!! xxxxx

Tuesday 15 January 2013

I GOT A REPLY FROM THE DEPARTMENT OF EDUCATION+++

FINALLY i got a reply from the department of education and it was POSITIVE news!! They agree that this, my cousins campaign is very important and have provided me with details of all local school and governments to help me get into schools to spread awareness. However the only downside is that this is at the school agreement and could only be done during PSHE sessions. This didn't stop me contacting all local secondary schools and to back up my enquiry i attached a copy of the letter received by the department of education. Today, 15th January 2013 i received a phone call from a local school - THEY ARE HAPPY TO SUPPORT MY CAMPAIGN AND HAVE PENCILLED IN A DATE FOR ME TO GO IN AND SPEAK TO ALL THE YEAR 10 STUDENTS ABOUT ORGAN DONATION! This is brilliant news but... i am not very good at speaking publicly hahaha! I have contacted the organ donation team to see if a professional/volunteer can assist in this session and have prepared leaflets to hand out as well as ordered plenty of stock from the organ donation website. I will keep you all posted on this but so far so good! Hopefully this is the start of good things! All for you Cousin!!!!!

Sunday 13 January 2013

Its been 11 days.....

11 days have now passed since my cousin passed away    :-(
I wish i could say the pain is easing.... but its not! quite the opposite really! Most nights i lay in bed crying myself to sleep! I still just cant bring myself to accept he is gone! I think that continuing his campaign probably doesn't help as i was doing this while he was here so its no different! I also cannot help but think that its the elderly who pass...not a 34 year old?! I'm dreading his funeral, but perhaps it will be closure for me? Or it will hit me straight in the face and actually realise he is gone, i wont see him again, talk to him again, cuddle him again, nor will he be the person there to cheer me up and look out for me like he always did! Only last night i had to text my cousin - i miss texting him everyday! knowing he is ok!
There was an article in the paper again on Friday - but this time the complete opposite to the first! this time it was paying a tribute to my cousin and still trying to get people to sign up!
I really do hope that by making the video, this blog and with all the support of friends and family people will sign up to the organ donor register! I pray no other families will ever have to deal with the amount of pain we all are going through! and the sense of denial!
If your reading this, and not signed up please ask yourself WHY? Is it selfishness, fear that you need to accept that 1 day you too will pass? Or that your organ will go to an alcoholic/drug user? Whatever your reason please take a moment and think what would you do if you needed a new organ? Would you take one if you were lucky enough to have one there for you? If the answer is YES... then think..... would you give 1 back once your time is up? If you could save a young persons life surely that in itself would make you want to sign up?!? Ive signed up - if something unfortunate happened to me then i would be happy knowing that i am saving someone else who is fighting for life needing an organ, just because my time is up doesn't mean someone Else's should be too! Also the fear of organs going to alcoholics or drug users - please consider there background, there may be a reason they have turned to alcohol/drugs- however then think there will more than likely always be a person of more importance than them - the emergency donor list!!!



Wednesday 2 January 2013

He has lost his battle :-(

Today at 3.30pm my cousin slipped away! Unfortunatly he has lost his battle after nearly 3 years of suffering and sadly never receiving a new heart. The pain felt is immense and the only way i feel close to my cousin now is by sitting on his facebook page reading all the comments his friends are putting. Deep down i know he is not suffering anymore however i feel mixed emotions. It hurts knowing he has left behind two amazing little boys however im sure that without a doubt they will have amazing memories of their dad, afterall he was and is their rock! Already all the memories i have are flooding through my head, only i cant help but wish i could have just 1 more moment with him! as i continously mention... i will not let my cousin down, i will make sure he is proud of me and continue to raise awareness about organ donation as he did put a lot of time and effort into this topic! RIP Jay!!! I love you, always have and always will! Now watch over your family and be proud of us all and in particular watch over your boys ensuring they grow up ith the same atitude on life as you did! Sleep tight cousin! xxxxxx

Dont let emotions come between your family!

Since the news about my cousin has been getting worse every day, today something smacked me right in the face! Instead of pushing the rest of my family away we should all be holding onto one another! Yes there may have been times where we disagreed and in particular these last couple of days i may have come across as a complete b**ch! Whether it can be put down to my emotions I'm not sure however putting on a brave face in front of my daughter is hard as the pain I'm feeling in my chest is intense!!! Ive realised i may have been snappy at members of my family, or gone to the extreme of not even communicating with them! But deep down, is this really what my cousin would have wanted? A simply sorry is probably not enough to some members, however i cannot explain how sorry i am for being like i have been! I can promise you all now that i will continue to help my cousin encourage people to sign up to the organ donor register so that no other family has to go through the amount of pain we are all feeling!! My heart goes out to my uncle... loosing his wife in 2010 and now things are going from bad to worse for his son! If anything, he and my cousins girlfriend and brothers need to know that we are all here and feeling the intense pain!! Life is unfair and lately it seems to be targeting my family more and more every year! so rather than pushing them away, spend time with the loved ones as tomorrow.....you may not get another chance!!!

Tuesday 1 January 2013

WE NEED YOU ALL TO PRAY!! PLEASE

At present, things really are not looking good for my cousin! Long story short but his body is just giving up after having to fight for soooo long! I cannot but feel for the rest of my family who need to make the decision whether or not to continue with his treatment. Deep down we all know that my cousin would not want to be suffering like this nor for his quality of life to be decreased compared to what it was. I keep telling myself that he will be fine, his a fighter so yeah....he WILL be fine! right?!?!?!???? I feel so useless being miles and miles away from him and i really want to be there holding his hand but then the last time i saw him, although he was living in hospital, i could have a full conversation with him, he was his usual chirpy self and conscious! I know thats how i want to remember him, but then the guilt i feel for not being there now! I just dont know what to do! His partner has her amazing family around her too but similarly i feel i should be there to support her in a hard time like this! Im getting sick and tired of the worst things happening to people who are closet to me! why is it that all the bad things happens to the people who least deserve it? My cousin has never set a single foot out of line, always worked before becoming ill, started a family with two amazing boys and then went on to meet his amazing and supportive partner who has stuck by him through everything! She has been his rock!!! PLEASE PRAY FOR MY COUSIN!!!