UPDATE: a newly established charity has been set up in memory of my cousin: 'My Butterfly Family' aiming to help children who has lost a parent and similarly parents who have lost a child due to not receiving their gift - an organ transplant.
For more information, please visit:
www.mybutterflyfamily.weebly.com


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*ORGAN DONATION*
Would you recieve an organ if you needed one?

IF YOU BELIEVE IN RECEIVING/DONATING AN ORGAN PLEASE DO SOMETHING ABOUT IT!

According to the NHS organ donation, (2012) Only 31% of the populaion have joined the organ donor register.Within England and Wales, in 2011 there were 484,367 deaths registered.

To understand the importance of becoming an organ donor that meant there were approximatly 2906202 organs wasted in 2011 alone based on each donor providing 6 organs each. (Office for National Statistics, 2012)

My Story

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IN 2010 MY AUNTIE LOST HER BATTLE, LATER THAT YEAR MY DEAR COUSIN WAS DIAGNOSED WITH EXACTLY THE SAME CARDIAC CONDITION.

MY COUSIN WAS ONLY 33 YEARS OLD, HAS 2 AMAZING LITTLE BOYS AND HAD SO MUCH TO FIGHT FOR.

HOWEVER, HE DIDNT RECIEVE THE HEART HE MUCH NEEDED AND SADLY SLIPPED AWAY FROM US 2-01-2013.

THE LAST FEW MONTHS OF HIS LIFE CONSISTED OF LIVING IN HOSPITAL, ON A TRANSPLANT UNIT WHICH WAS FAR FROM HOME MEANING FEW VISITORS WERE ABLE TO TRAVEL THE DISTANCE, ESPECIALLY HIS CHILDREN.

HE WAS UNABLE TO LEAVE THE HISPITAL UNTIL/IF A HEART BECAME AVAIABLE. HE WAS COVERED IN BRUISES, ON ENDLESS MEDEICATOIN, CONSTANTLY HOOKED UP TO MACHINES MEANING HE COULD NOT HAVE A BATH OR A SHOWER, SOMETHING WE DAILY TAKE FOR GRANTED.


All his pain, suffering and loneliness could have been limited if a donor heart was available! YOU CAN BE A HERO AND SAVE LIVES. #liveon

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YOU CAN CHOOSE WHAT TO DONATE!!!!! (Stage 2 of registration)
Please dont delay, "I'll register tomorrow".... TOMORROW COULD BE TOO LATE
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The feeling of being desperate for an organ will not hit untill you or a loved one is in the position of needing an organ to survive.

Part of you will always live on once registering to the organ donor register.
BE A HERO

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LUKE 6:38:

"Give, and you will receive. Your gift will return to you in full--pressed down, shaken together to make room for more, running over, and poured into your lap. The amount you give will determine the amount you get back."

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Tuesday, 22 October 2013

First Memorial Gift Ordered Via The Newly Establised Charity (My Butterfly Family)

The newly established charity in memory of my cousin, (My Butterfly Family) has finally commenced and we have been able to order the very first memorial gift for a very special young lady. Thank you just isn't enough to every one who has kindly helped achieve this.

If you would like to know more about this charity please visit: www.mybutterflyfamily.weebly.com

If you would like to donate to the charity please do so via PayPal: mybutterflyfamily@gmail.com

Once again, thank you!

Thursday, 10 October 2013

Time for BIGGER changes

So I have now come up with a fantastic new idea and through research I feel this has the potential to be a HUGE success. With the given situation regarding my dear cousin, this has opened my eyes into the suffering his children have gone through in accepting that their father has passed away. Prior to this, they had to accept he was living in hospital and had limited chances to visit him. Putting this all together I have taken on the challenge of setting up my own charity. It will be aimed at families who have lost a loved one whether it be a child loosing a parent or a parent loosing a child due to not receiving a much needed organ transplant. This being due to research and discovering there are limited sources to help children and parents who have lost a loved one due to organ failure and personally feeling that after witnessing such a traumatic experience, both children and parents need support, to know there are others in a similar situation and to be offered a day in which revolves around them. Being fully aware that there are many families within the UK in a similar situation there will be a selection process of children or parents who are nominated to the charity. The charity itself will rely purely on generous donations from the public so please understand that it may be a slow process at present.

Each successful nominated family will receive a beautiful memorial gift of their loved one and then be offered a day which is purely revolved around the person/s nominated. This is aimed to help with the bereavement process and to show those affected that although their loved one has gone, continuing with their life does not mean they have forgotten, they are learning how to cope without their loved one. Through research it became clear that many would appreciate a memorial item which they can look at everyday, knowing they are supported but most importantly this will help with the bereavement process. Many also agreed that a day revolving around the nominated person would help, particularly children, in accepting and to provide positive emotions.

The main aim of the charity is to 'buddy' up local families who are experiencing similar situations aiming to provided much needed support and to be able to answer any questions. There is no better advice than what comes from a person who has experienced the same.

I fully understand this may be a slow process in starting up this charity, so please bare with us, however through research I need to achieve £5,000 a year to be able to set up and register this charity officially. Because of this small set back, I have set up a pay pal account in which donations can be sent to and already planning future promotional events aiming to help achieve and progress this target.

If you would like to make a donation towards this charity please send via PayPal to: mybutterflyfamily@gmail.com  Any amount will be gratefully received. And please remember that your be helping both children and parents who have experienced such a traumatic event which no one should have to experience.
 
Thank you in advance.

Tuesday, 24 September 2013

My own Epetition - organ donation needs more coverage on TV & schools

Looking through the Epetition website, I am amazed to see that many regarding organ donation haven't managed to receive the 100,000 signatures needed to be debated in the House of Commons. Well its about to change, I have started up an Epetition for 1 year which states that organ donation needs more coverage on TV and secondary schools. From the heart" a TV campaign managed a total close to 147,000 people signed to the donor register throughout the week of the campaign. Imagine the number of potential registered donors with regular TV promotion. As for secondary schools, well through personal contact with the Department of Education, it became clear that awareness may be raised during PSHE lessons to which the school decided whether or not to discuss the topic. I personally went into a local school and performed a presentation the feedback I received was fantastic and many had questions and voiced concerns they had. Many pupils also reported that they will go home and discuss organ donation with their parents. I feel this was a huge success, and it is clear many young people have unanswered questions regarding organ donation which need to be answered.

Lets achieve the much needed 100,000 signatures and make a start on raising awareness in my cousins memory!
 
TO SIGN THE EPETITION PLEASE GO TO: http://epetitions.direct.gov.uk/petitions/54567 

Wednesday, 4 September 2013

(Another) PETITION: Free Prescriptions for Organ Transplant Recipients

For those fortunate enough to receive an organ, I agree strongly with this petition! they should receive free prescriptions. Receiving an organ does not happen by choice and it is a real life changing situation and experience, so why should they have to pay for medication which is essential for them? People who take drugs don't have to pay for their methadone, so why should those who HAVE to have medication because of an illness which occurred not through choice. As a nurse I fully understand there are many reasons why people may turn to drugs so please do not feel I am discriminating against people as I am not, far from it. As many of you may have gathered by now, organ donation and all aspects around this topic are very close to my heart and there is a lot of change required around this.

If you also agree that people who receive an organ should not have to pay for their medication  then please sign the petition below! Thank you in advance.

Organ Donation: Switch to an Opt-Out System

Report by the BBC: A change in the law to bring in an opt-out organ donation system has been overwhelmingly voted through by Welsh assembly members.
Wales will become the first UK country to adopt a process where individuals will be presumed to have consented for their organs to be donated unless they opt out.

If Wales can achieve this, then why cant England? It doesn't take much to consider the amount of lives which could be saved if everyone was signed to the organ donor register. This is a topic I feel very strongly about! Too many people will happily take an organ if they required one but many wont sign to the organ donor register - WHY? yes it is fearful to consider the end of your life however, for me, I feel great knowing I may save another innocent persons life when mine is over.

Please if you feel strongly that the England should switch to the opt-out system, please sign this petition! thank you in advance.

Monday, 26 August 2013

Family Fun Day in Memory of Jay for Harefield Hospital

On the 3rd August 2013 I organised a family fun day aimed to raise funds for the transplant unit at Harefield hospital where my cousin spent his final few months. I had been organising this event since the beginning of 2013, and worked really hard to ensure I had plenty for families to do.
 Stalls included:
  • baby competition
  • baby stall
  • bouncy castle
  • hook a duck
  • hoopla
  • refreshments
  • bric a brac
  • cake stall
  • guess the weight of the cake
  • how many sweets in the jar
  • displays - army cadets and dancers
  • clairvoyant
  • teddy tombola
  • book and DVD stall
  • grand raffle
  • candyfloss
  • And others but most importantly an Organ donation stall.

It was a fantastic day and a great turn out! Thank you isn't enough to all those who helped out on the day! My first event I have ever organised by myself turned out to be very stressful however hasn't put me off! Bigger things will be happening all in memory of my cousin and aimed to raise more money so other families do not have to suffer what we or my cousin did.
 
**IN TOTAL OVER £700 WAS RAISED** I aim to spend this money on hair washing facilities for the transplant unit in hope to improve simple, living conditions.
 

Sunday, 30 June 2013

SkyDive in Memory of my Cousin to raise awareness and Funds.

Hello, I hope you are well! On the 21st July 2013 myself and a few others will be doing a sky dive in memory of my cousin! This is a special day as it is his birthday but is also the first birthday since we lost him :-( Please take note that I have personally paid to do the sky dive and have NOT gone through a charity scheme! The reason for this is through a scheme the charity seemed to receive very little and my view is if I want to do a sky dive then I will pay for myself. Doing this will not be easy! My palms sweat at the mere thought of jumping!!!!! I hate heights and planes - not a great combination! but my cousin taught my that you only live once so make the most of it! He was scared and went through a lot, he had no choice but NEVER did he give in nor be defeated until he truly could not take anymore!

Please, if you would like to sponsor me to jump and continue to raise awareness on organ donation and raise funds for the British Heart Foundation, please click on the link below! You will be taken to a page linked to the British Heart Foundation, this is also to prove that all your funds will be going to the charity!

Thank you in advance!